Health
AIDS/HIV
Champaign
HIV Support Group (2002 A,P) This group is targeted toward positive individuals, but no one is turned away for wanting to learn. It includes open discussion, socializing, and education. Meets last Monday of the month (unless a federal holiday), 1:00-2:30 p.m., Champaign-Urbana Public Health District Off-Site Clinic, 24 E. Green, Champaign. Call: Darrell Scott (217) 531-5383 Email: dscott@c-uphd.org Write: Champaign-Urbana Public Health District, 201 Kenyon Rd., Champaign IL 61820
Livingston
Pontiac Support Group (2017 F,L) The Pontiac Support Group is for those individuals with an AIDS/HIV diagnosis. The group focuses on supporting these individuals and assisting them in obtaining, sustaining, and succeeding in healthcare. The group will focus on improving an individual’s knowledge of health and reading lab results; tracking improvements; increasing understanding of applicable laws and understanding impacts when disclosure of the diagnosis is mandatory. Meetings are restricted to only those individuals with AIDS/HIV so that those newly diagnosed can focus on self-acceptance as well as education. Attendees will be asked to sign a confidentiality agreement. Adherence Counseling and Peer Services will also be offered. Meets 3rd Tuesday, 4:00p.m., meeting location provided upon proof of diagnosis. Call: Darrell Scott (217) 531-5355 Email: dscott@c-uphd.org Local Website: http://www.c-uphd.org/
Vermilion
Danville HIV Support Group (2013 F,L) This support group is for individuals dealing with the diagnosis, treatment, stigma, and acceptance of HIV/AIDS. These meetings are confidential and all participants will be asked to sign a confidentiality statement regarding the participants, discussion, and attendees. Meetings vary from having speakers on various topics to open forum meetings where the group discussions are based on attendees’ specific issues. Group activities have been organized from cookouts to holiday pot-lucks. Support group flyers/reminders can be sent to interested parties prior to the meetings. Referral information for case management services or peer navigator services are also offered. Meets 2nd Thursday of the month, 11:30 a.m. – 1:00 p.m. at the Prairie Center, 1222 East Voorhees, Danville. Call: (217) 531-5355 Email: dscott@c-uphd.org Local Website: c-uphd.org Write: Champaign-Urbana Public Health District, 201 W. Kenyon Road, Champaign, IL 61820
ALS (Lou Gehrig’s Disease)
Central Illinois
ALS (Lou Gehrig’s Disease) United Greater Chicago’s Central IL Support Group (2016 A,P) This organization provides a variety of services to persons living with ALS, their family members, friends and caregivers are welcome to attend the support groups. The groups are an opportunity to meet others, learn about new information and resources, and provide or receive support and encouragement. Guest speakers attend some of our supports groups, and talk about their area of expertise as it relates to individuals living with ALS. The meetings are the 2nd Thursday of the month, 6:00-8:00 PM over zoom. Call: Kellie Branch-Dircks (309) 696-7184 Email: kellie@alsunitedchicago.org Local Website: https://alsunitedchicago.org/ Write: ALS United Greater Chicago, 5315 N Clark St #650, Chicago, IL 60640
Champaign
ALS (Lou Gehrig's Disease) United Greater Chicago’s Central IL Support Group (2016 A,P) This organization provides a variety of services to persons living with ALS, their family members, friends and caregivers are welcome to attend the support groups. The groups are an opportunity to meet others, learn about new information and resources, and provide or receive support and encouragement. Guest speakers attend some of our supports groups, and talk about their area of expertise as it relates to individuals living with ALS. The meetings are the 2nd Thursday of the month, 6:00-8:00 PM over zoom. Call: Kellie Branch-Dircks (309) 696-7184 Email: kellie@alsunitedchicago.org Local Website: https://alsunitedchicago.org/ Write: ALS United Greater Chicago, 5315 N Clark St #650, Chicago, IL 60640
Always Loved & Supported Bereavement Support Group This is a specialized program to support those who have lost a loved one to ALS. The focus will be on helping those bereaved to cope with their loneliness, how to understand their new roles, and healing ways to manage their emotional pain. For questions regarding the program, please reach out to Jennifer Beckman, LCSW, CSW-G. Meets 4th Wednesday every month 7:00-8:30 PM over zoom. Call: 309-261-7052 Email: jennifer@alsunitedchicago.org
Alzheimer’s Disease / Dementia
Champaign
Minds in Motion (2007 F,P) This program enhances the mental, physical, and cognitive functioning of older adults including those diagnosed with early memory loss. Activities include “brain fitness” activities (mental exercises, games, memory enhancement), exercises (taiji, dance, strength, and endurance training), relaxation therapies, creative activities (art, writing, music, and storytelling), social activities, and community events. Family members of individuals with early memory loss focus on self-care while creating positive activities for themselves and their family members. Call to verify meeting times. Meets Thurs., 10:00 a.m.-2:00 p.m., First United Methodist Church, 210 W. Church St., Champaign. Call: Program Director Sandy Burgener, PhD (217) 898-4251 or Assistant Director Vic Christensen, MSW for current meeting dates, information, or to enroll in the program Email: Victoria Christensen-vchriste906@gmail.com Email: Sandy Burgener- sburgenr@illinois.edu
Women’s Dementia Support Group (2016 F,L) This group is a lay person-led support group for women who are spouses and/or caregivers of a family member with dementia. Leadership is shared among those in attendance. Discussions focus on sharing suggestions for caregiving, available resources, and provision of support to one another. Meets on Mondays from 10:30 – 12:00 p.m. Call: Kathy Vance (217) 493-4228 Email: kvance0618@gmail.com
Macon
Macon Memories Memory Cafe (2015 F,P) This support group is open to caregivers and care-receivers who have been diagnosed with Alzheimer’s or other form of dementia. This social group offers support, socialization and enrichment activities, including memory games, music, art, and other physical games. Education services are also provided. The group meets on the 2nd and 4th Mondays at 1:00 p.m. at Eagle Ridge of Decatur, 875 W. McKinley, Decatur. (Use lower level back entrance; group meets in the lower-level activity room.) Call: Sally Williams or Jenelle Hockaday 217-423-6988 Email: swilliams@maconchd.org Email: jhockaday@maconchd.org Local Website: maconcountyhealth.org
Vermilion
Alzheimer’s Caregiver Support Group (2007 F,P) This group provides education and support for caregivers of people with Alzheimer’s disease. Meets 3rd Thurs., 5:00-6:00 p.m., Hawthorne Inn, 3222 Independence Dr., Danville. Call: Kim LeLoup (217) 431-1600, ext. 5 Email: gardencourt@libertyvillageofdanville.com Write: Kim LeLoup – Alzheimer’s Caregiver Support Group, Hawthorne Inn, 3222 Independence Dr., Danville, IL 61832
Telephone Support Group for Caregivers of Veterans with Dementia (2016 A,P) The VA Illiana Health Care System provides a telephone support group free of charge to anyone who provides care in the home to a Veteran with dementia, or a Veteran who provides care in the home for a family member with dementia. The Veteran must be enrolled in VA, must have a VA primary care physician and a diagnosis of dementia (any type), made by a VA provider. To participate, you must be the person who provides hands-on care to the Veteran. Caregivers will participate in a one hour, once-a-week group telephone call, for six consecutive weeks. The call is toll-free. The group will focus on skill-building in the areas of problem solving and mood management and will provide an opportunity to share with and learn from other group members. Call: 1-855-260-3274
Amputee
Champaign
Central Illinois Amputee Support Group This group provides support for amputees, their family members, friends and care givers. The goal is to provide peer support, interaction and encouragement to all touched by limb loss. Meets 2nd Wednesday of every month, 6:00 p.m., Rehab Activity Room, 3rd floor Rehabilitation and Physical Medicine Unit, Carle Foundation Hospital, 611 W. Park St., Urbana. Also find us on Facebook, Twitter & Instagram. Call: (217) 663-8064 Email: nikki@CentralIllinoisAmputees.org Website: http://www.CentralIllinoisAmputees.org
Bariatric Surgery
Champaign
Bariatric Support Group (2001 A,P/L) This group is for bariatric surgery patients, past, present, and prospective, and gives a chance to share ideas and concerns, talk about frustrations, celebrate successes, and hear others speak about their experiences. Meets 2nd Thurs. excluding Dec., 6:00-7:00 p.m., Carle Main Campus, South Clinic 5th fl., General Surgery Department, Urbana. Call: Ashley McCartney, Lindsey Eichelberger, or Ann Carroll (217) 383-3240 Email: ann.carroll@carle.com Local Website: carle.org/Events/category/Support-Groups Write: Ann Carroll, Carle Champaign on Curtis, 1701 W. Curtis Rd., Champaign IL 61821
Brain Injury / TBI
Champaign
Brain Injury Support Group of East Central Illinois (1990 A,P) This group provides support and education individuals who have sustained a traumatic brain injury or acquired brain injury (such as brain tumor, aneurysm, stroke, encephalopathies), as well as to the family members/caregivers. Call to confirm dates and times of meeting and events. Meets 2nd Sat., 10:30 a.m.-12:30 p.m. Call: (812) 682-0323 Email: dinfo@bridgestherapy.org Local Website: https://carle.org/Events/category/Support-Groups National Website: biail.org
Decatur
Brain Injury Support Group of East Central Illinois (1990 A,P) This group provides support and education individuals who have sustained a traumatic brain injury or acquired brain injury (such as brain tumor, aneurysm, stroke, encephalopathies), as well as to the family members/caregivers. Call to confirm dates and times of meeting and events. Meets 1st Thurs., 12:00 p.m.-1:00 p.m. at St. Mary’s Hospital. Call: (812) 682-0323 Email: info@bridgestherapy.org Local Website: https://carle.org/Events/category/Support-Groups National Website: http://www.biail.org
Breast Cancer
Champaign
Christie Clinic Breast Cancer Support Group (1997 F,P/L) This group is open to women who have breast cancer, their family members and support persons and others interested in learning more about breast cancer. This wellness-focused group includes breast cancer survivors of all ages and experienced health care professionals. Our goal is to share ideas, provide support, answer questions, and offer solutions to problems for people who are coping with breast cancer. The format of each meeting includes a short presentation by a guest speaker followed by informal group interaction. You may attend as often as you wish, and you can bring along a family member or friend. Meets 1st Wed., 7:00 p.m., 2nd Fl. Meeting Rm., Christie on Windsor, 1801 W. Windsor Rd., Champaign. Call: Department of General Surgery (217) 366-5445 Local Website: christieclinic.com
Reach to Recovery (1969 A,P/L) This one-on-one peer support program is for women who have a concern about breast cancer. Trained volunteers who are breast cancer survivors assist newly diagnosed patients, those facing a possible diagnosis, patients experiencing lymphedema, those who have completed treatment, or patients facing a possible recurrence or advanced breast cancer. Call: American Cancer Society (800) ACS-2345 (227-2345) or Claire Sharp (309) 688-3480 Email: claire.sharp@cancer.org National Website: cancer.org
Young Survival Coalition (2010 A,L) This group provides support to premenopausal women with breast cancer and their families. The group is affiliated with an international organization that focuses on the issues unique to young women with breast cancer. Spouses, partners, and children are welcome to attend to discuss issues that members face and to socialize. Meets last Tues., 7:00 p.m., Jupiter’s at the Crossing, 2511 Village Green Pl., Champaign. Call: (877) 972-1011 Email: midwestregion@youngsurvival.org National Website: youngsurvival.org
Vermilion
Breast Cancer Support Group (2013, F,L) This group in the Hoopeston area provides caring and support to women with breast cancer. The co-facilitated group is designed for women to openly share their experiences and feelings, ask questions, and support each other. The group often meets at the Pit Stop at The Fast Lanes Bowling Alley, and welcomes anyone interested in joining for the evening. Meeting dates, locations and times may vary, but group usually meets on the 3rd Thurs. of each month at 6:00 p.m. Call Pat for more information. Call: Pat Foster (815) 984-4040 Email: pjfrn67@hotmail.com
New Horizon Breast Cancer Support Group (2004 F,P) This group, led by breast cancer survivors, provides education and social support. The group is open to all women and men with breast cancer, whether they are newly diagnosed or long-term cancer survivors, and their family members. Guest speakers and fellowship are included in the meeting. Meets 3rd Mon., 6:00 p.m., Jocko’s, 305 W. Williams St., Danville. Call: Presence Cancer Center (217) 431-4290 Email: pusmcnewhorizon@presencehealth.org
Cancer (General)
Champaign
Carle Daytime Cancer Support Group (1998 F,P) This group is an open forum for anyone who has or knows someone with cancer. Meets 2nd Wed., 12:00-1:00 p.m., Carle Cancer Center, 1st fl. conference rm., 509 W. University Ave., Urbana. Call: Contact Social Work at (217) 383-4581 or (217) 383-4066 Email: kimberly.harden@carle.com Local Website: https://carle.org/classes/support-groups/daytime-cancer-support-group.aspx
Carle Head and Neck Cancer Roundtable Discussion Group – Group II (2007 F,P) This group educates and supports patients and survivors of head and neck cancers, their family, and friends, regardless of where clinical care is received. Meets 4th Wed., 2:00-3:00 p.m., Carle Cancer Center, 1st floor Conference Room, 2nd fl., 509 W. University Ave., Urbana. Call: Kimberly (217) 383-4581 Local Website: https://carle.org/Events/category/Support-Groups Write: Carle Cancer Center, 509 W. University Ave., Urbana, IL 61801
Leukemia/Lymphoma/Myeloma/Transplant Support Group (2007 F,L) This group provides support and education to patients, family members, and friends. Meetings are scheduled based on the needs of the group members. Call for meeting time and location. Call: Mica Witt (217) 586-1667 or (217) 898-1018; or Dan Culkin (217) 893-0362 Email: wittmi@frontier.com
Vermilion
Cancer Prayer and Support Group (2013 F,L) This group is for anyone, including family members and friends, looking for support during or after involvement with any type of cancer. The group provides members a safe, respectful, caring, and nonjudgmental environment to share questions, fears, and concerns they are experiencing as part of cancer. While prayer is part of each meeting, you do not have to be part of any church to attend. Meets 2nd Mon., 6:30 p.m., Fithian United Methodist Church, 101 Clinton St., Fithian. Call: Call Jim or Carolyn Greer (217) 582-2517 or Pastor Kim Dancey (217) 620-5719 Email: carolynsue40@comcast.net Write: Cancer Prayer and Support Group, Fithian United Methodist Church, 101 E. Clinton St., Fithian, IL 61844
Chronic Fatigue Syndrome
Champaign
Chronic Fatigue Syndrome Wellness Support (1995 F,L) This group provides only phone support for people suffering from chronic fatigue syndrome. Call: Lisa Schicht (217) 355-1778 Email: lisaenya25@sbcglobal.net National Website: cfids.org
Crohn’s Disease and Colitis
Peoria
Crohn’s and Colitis Foundation of America – Peoria Affiliate (1989 A,L) This group provides support and education to people with Crohn’s disease or colitis. Family and friends are welcome. Free parking and educational materials are available. Meets 4th Thurs., 7:00-9:00 p.m. in Feb., April, June, Aug., and Oct., 7th fl., St. Francis Medical Center, 530 N.E. Glen Oak Ave., Peoria. Call: Kathy Porter or chapter office (847) 827-0404 Email: jnkporter35@gmail.com Local Website: ccfa.org
Diabetes
Champaign
DiaBesties- Young Adult Diabetes Support Group (2016, F,P/L) This support group gives the young adult person with diabetes an avenue to share ideas and information on advances in the disease, as well as dealing with the fact that diabetes impacts all areas of one’s life. The American Diabetes Association standard of providing ongoing diabetes self-management support is provided in this group. For people 18 years and older. Meets 2nd Tuesday, 5:30 p.m., Carle on Kirby, 1813 W. Kirby Avenue, Champaign. Call: Dori Puracchio, RN, CDE (217) 383-3490 Email: dori.puracchio@carle.com Local Website: carle.org/classes/support-groups
Diabetes Support Group – Champaign (A,P/L) This group provides support and education for people with diabetes, their friends, and family members. Each month a speaker addresses issues related to managing diabetes. The group is designed to provide education, and emotional and social support. You do not have to be a Carle patient to attend, and no registration is necessary. Meets 3rd Tues., (except Dec.), 7:00-8:00 p.m., Carle Champaign on Kirby, 1813 W. Kirby Ave., Champaign. Call: Martha Trenkamp, RD, CDE, Carle Endocrinology Dept. (217) 383-3490 Email: martha.trenkamp@carle.com Local Website: https://carle.org/Events/category/Support-Groups Write: Martha Trenkamp, Carle Diabetes/Endocrinology Dept., 1813 W. Kirby Ave., Champaign, IL 61821
Second Chance Transplant and Dialysis Support Group (1995 A,P/L) This support group is for people who have had or are considering any kind of organ transplant, or who are on dialysis. Meets 1st Tuesday every month, Baytowne Apartments clubhouse, 1000 Baytowne Drive, Champaign, IL Contact: Jim McFarlin, ( 313) 670-7728 Email: jimmcfarlin@outlook.com
Ford
Diabetes Support Group – Gibson City (1996 F,P) This group is for people with diabetes and their family members. Meets 3rd Monday, (except Dec. and Jan.), 4:00 p.m., Gibson Area Hospital & Health Services Education Center, 209 E 8th St, Gibson City. Call: Eileen Woolums, RN, BSN, CDE (217) 784-2459 Email: eileen_woolums@gibsonhospital.org Local Website: gibsonhospital.org Write: Eileen Woolums, Gibson Area Hospital and Health Services, 1120 N. Melvin St, Gibson City, IL 60936
Vermilion
Diabetes Support Group – Danville (F,P) This group is designed to provide emotional and social support and education to people with diabetes. A speaker at each meeting addresses issues related to managing diabetes. The group is free and open to the public, but space is limited. Preregistration is recommended. Meets 4th Tues. (except Nov. and Dec.), 6:30-7:30 p.m., Danville Public Library 319 N. Vermillion St., Danville. Call: Tricia Hogg or Jean Land (217) 431-7601 Local Website: https://carle.org/Events/category/Support-Groups
Eating Disorders (Anorexia/Bulimia)
Champaign
Overeaters Anonymous (OA) – Champaign County (1960 A,L) This 12-step, self-help group is for compulsive overeaters and people with anorexia or bulimia. Call: (888) 216-8458 for local meetings (automated message) or (505) 891-2664 for national office Email: info@oa.org Local Website: https://region5oa.org/ National Website: oa.org Write: Overeaters Anonymous, P.O. Box 44020, Rio Rancho, NM 87174
Ehlers Danlos Syndrome
Champaign
Ehlers Danlos Syndrome Support Group (2016 F,L) Anyone with a diagnosis of Ehlers Danlos Syndrome (EDS) is welcome. Call: Deborah Royce (207) 251-5744 Email: dlr4951@gmail.com National Website: http://www.chronicpainpartners.com/champaign-il/
Epilepsy / Seizure Disorders
Champaign
Epilepsy Advocacy Network (2022) This group is for people with epilepsy or other seizure disorders and for their family and friends. Meets 1st Tuesday of the month, 5:00-6:00 p.m., at the Champaign Public Library. Call: Kristen Neaville (217) 621-5842 or Epilepsy Advocacy Network (815) 846-0881, Ext. 700 Email: kristen@epilepsyadvocacynetwork.org Local Website: epilepsyadvocacynetwork.org
Epilepsy Support Group (2003 A,P/L) This group is for people with epilepsy or other seizure disorders and for their family and friends. Meets 1st Mon., 6:30-8:00 p.m., virtually. Call: Kim Jassen (217) 867-2485 or Epilepsy Foundation of Greater Chicago (312) 939-8622, Ext. 215 or (800) 273-6027 Local Website: epilepsychicago.org Write: Leigh Schommer, Epilepsy Foundation of Greater Chicago, 17 N State St., Suite 650 Chicago, IL 60602
Fibromyalgia
Champaign
Champaign-Urbana Fibromyalgia Education and Support Group (1990 A,L) This group provides support for anyone with fibromyalgia, and for their families and friends. Speakers are invited. Meetings include time for caring and sharing. Meets 3rd Wed., every other month beginning in Jan., 6:00-7:30 p.m., Carle Champaign on Curtis, 2nd fl. conference rm., 1701 W. Curtis Rd., Champaign. Call: Beth Beckett (217) 898-1717 Email: mrsdb@att.net Email: sommer1@comcast.net Local Website: https://carle.org/Events/category/Support-Groups National Website: arthritis.org Write: Phyllis Sommer, 2103 Rainbow View Dr., Urbana, IL 61802-5619
Gluten sensitivity
Ford
Gluten Free Living (2012 F,P) This support group provides answers to those whose lives are touched by celiac disease or gluten sensitivity. There is a licensed dietitian at each meeting to answer questions about diet. Meets 3rd Tues. 6:00-7:30 p.m. in the Radiology waiting area of Gibson Area Hospital. Does not meet during Dec. or Jan. Call: Benjie Pardick (217) 784-2221 Email: benjie_pardick@gibsonhospital.org Write: Benjie Pardick, 1120 N. Melvin, P.O. Box 429, Gibson City, IL 60936
Heart Disease
Champaign
Carle Cardiac Support Group (2013 F,P) This group is for cardiac patients, their families, and the public. At each meeting, there is a speaker followed by refreshments and time for people to share. Meets 4th Tues. (2nd Tues in Dec.) every other month 3:30-5:00 p.m. Feb., April, June, Aug., Oct., and Dec. with location subject to change. Call: Maggie (217) 904-7430 or Katherine (217) 904-7429 Local Website: https://carle.org/Events/category/Support-Groups Write: 611 W. Park St., Urbana, IL 61801
Left Ventricular Assist Device (LVAD) Support Group (2015 F,P) This group is open to patients who have undergone LVAD surgery. Meets 3rd Thurs. 4:00-5:30 p.m. (No regular meeting in Nov. or Dec. Christmas party Dec. 10.) Heart and Vascular Institute, Conf. Rm. B, 611 W. Park St. Urbana. Call: Pam Moore (217) 904-7135 Local Website: https://carle.org/Events/category/Support-Groups
Powerful Hearts (1997 F,P/L) This group offers help, support, and encouragement to heart disease patients and their families. The meeting allows time for sharing recovery and life experiences to aid in support during the healing phase and beyond for those living with heart disease. There is a visitor’s program to provide support for those hospitalized; training is provided. Meets every six weeks, OSF Heart of Mary, limited numbers of participants allowed. Call: Alison Ball (217) 337-2237
Iroquois
Lucky Hearts Support Group (1989 F,P) This group is for people with heart disease and their family members and significant others. Call to confirm a meeting. Meets 2nd Tues., every other month beginning in Feb., 1:30 p.m., 1st Fl. Conference Rm., Iroquois Memorial Hospital, Watseka. Call: Marsha Hubert (800) 242-2731, ext. 7773 or (815) 432-7773 Email: marsha.hubert@imhrh.org Local Website: iroquoismemorial.com Write: Marsha Hubert, Iroquois Memorial Hospital, 200 E. Fairman, Watseka, IL 60970
Peoria
TOUCH – The Organization for Understanding Congenital Hearts (1985 A,P/L) This group empowers families, children, and adults who have congenital or acquired heart defects. The group makes a difference through emotional support, education, and public awareness. The group provides a ‘heartline’ phone support number, newsletter, and annual picnic. Call: (309) 655-3419 Local Website: touchhearts.org
Inflammatory Bowel Disease / Irritable Bowel Syndrome
Peoria
Crohn’s and Colitis Foundation of America – Peoria Affiliate (1989 A,L)This group provides support and education to people with Crohn’s disease or colitis. Family and friends are welcome. Free parking and educational materials are available. Meets 4th Thurs., 7:00-9:00 p.m. in Feb., April, June, Aug., and Oct., 7th fl., St. Francis Medical Center, 530 N.E. Glen Oak Ave., Peoria. Call: Kathy Porter or chapter office (847) 827-0404 Email: illinois@ccfa.org Local Website: ccfa.org
Intersex
Central Illinois
Intersex Social and Support Group (2023, L) This Zoom group provides support to Intersex individuals, their families, and allies. Individual meetings are currently being offered as well as group meetings. Contact Robbi for meeting times and zoom information. Email: robbirussell00@gmail.com
Lupus
Peoria
Lupus Support Group of Central Illinois (1976 F,P/L) This group provides support, education, and research information to lupus patients, and to families, medical personnel, and the public. Call in advance in case of inclement weather. Meets 1st Mon. 6:00-8:00 p.m., March – Dec., Soderstrom Dermatology Center, Annex Bldg., 4909 N. Glen Park Place, Peoria. Call: Kelly Erps (309) 620-2935 Email: centrallupas@mailbug.com Write: Kelly Erps, Lupus Support Group of Central Illinois, P.O. Box 791, Pekin, IL 61555-0791
Multiple Sclerosis (MS)
Champaign
Multiple Sclerosis Self-Help Support Group (1993 A,L) This group addresses issues for people living with multiple sclerosis and their family members. The group maintains an upbeat approach and provides support and education about multiple sclerosis. Literature available. Refreshments are served. Meets 2nd Sat., (except Dec.), 10:00 a.m.-12:00 p.m., First Baptist Church, 1602 S. Prospect Ave., Savoy. Contact: Melissa Mills. Email: savoymsgroup@yahoo.com Local Website: msillinois.org National Website: nationalmssociety.org
McLean
Bloomington/Normal M.S. (Multiple Sclerosis) Support Group (1960 A,L) This group provides discussion and guest speakers for people with multiple sclerosis and their families and friends. Meets 4th Tues., 6:30 p.m., St. John’s Lutheran Church, Rm. 421, 1617 E. Emerson St., Bloomington (corner of E. Emerson St. and S. Towanda Ave). Call: Ryan Remkus (309) 530-6661 or Kay Hankins (309) 830-0871 Email: jarrr1@yahoo.com Email: hankins_kay@comcast.net Local Website: www.facebook.com/BNMSSupport
Piatt
Piatt County MS Support Group (1991 A,L) This group addresses the issues of people diagnosed with multiple sclerosis and of their family members. The group maintains an upbeat approach that includes support and education. Evening meetings are held quarterly. Call Paige for information on meeting dates and location. Call: Paige Buck (217) 372-4831 or (217) 369-9276 Email: kpbuck@hughes.net
Obesity
Champaign
Bariatric Support Group (2001 A,P/L) This group is for bariatric surgery patients, past, present, and prospective, and gives a chance to share ideas and concerns, talk about frustrations, celebrate successes, and hear others speak about their experiences. Meets 2nd Thurs. excluding Dec., 6:00-7:00 p.m., Carle Main Campus, South Clinic 5th fl., General Surgery Department, Urbana. Call: Ashley McCartney, Lindsey Eichelberger, or Ann Carroll (217) 383-3240 Email: ann.carroll@carle.com Local Website: https://carle.org/Events/category/Support-Groups Write: Ann Carroll, Carle Champaign on Curtis, 1701 W. Curtis Rd., Champaign IL 61821
Overeaters Anonymous (OA) – Champaign County (1960 A,L) This 12-step, self-help group is for compulsive overeaters and people with anorexia or bulimia. Call: (888) 216-8458 for local meetings (automated message) or (505) 891-2664 for national office Email: info@oa.org National Website: oa.org Write: Overeaters Anonymous, P.O. Box 44020, Rio Rancho, NM 87174
TOPS (Take Off Pounds Sensibly) – East Central Illinois (1948 A,L) This group’s mission is to support members as they take and keep off pounds sensibly. Its two-fold objective is to encourage healthy lifestyles through weight management support groups and by sponsoring obesity research. TOPS publishes educational materials to help its members understand the dynamics of behavior change, good nutrition, and increased activity in developing a healthy new lifestyle. Annual membership, which includes a member magazine, is $32 plus nominal chapter fees to cover operating expenses – usually less than $5 per month. Call: Sharon Dines (815) 698-2098 Email: sharondines712@yahoo.com National Website: www.tops.org Write: Sharon Dines, 2353 N. 1250 East Rd., Danforth, IL60930
Vermilion
TOPS (Take Off Pounds Sensibly) – Vermilion (1948 A,L) This group’s mission is to support members as they take and keep off pounds sensibly. Its two-fold objective is to encourage healthy lifestyles through weight management support groups and by sponsoring obesity research. Annual membership, which includes a member magazine, is $32 plus nominal chapter fees to cover operating expenses – usually less than $5 per month. There are several weekly meetings in Vermilion County. For meeting information, check the website, e-mail, or call. Call: Coordinator, Sharon Dines (815) 698-2098 Email: sharondines712@yahoo.com National Website: www.tops.org Write: TOPS, 807 Franklin, Danville, IL61832
Ostomy
Champaign
Ostomy Support Group (2015 A,P) This group provides support and resources for patients, family and friends of patients with a colostomy, ileostomy or urostomy. There is no need to be a Carle patient to attend. Meets 3rd Weds. 6:00-7:00 p.m. virtually. Call: Leigh Kauwell (217) 326-4325 Email: leigh.kauwell@carle.com Local Website: https://carle.org/Events/category/Support-Groups National Website: ostomy.org Write: Leigh Kauwell, Carle Wound Healing Center, 611 W. Park St., Urbana, IL 61801
Parkinson’s Disease
Champaign
Parkinson’s Support Group (2013, F,L) This support group for Parkinson’s disease patients includes socializing, exercise, and small group discussion. Activities are led by Parkinson’s patients and other volunteers. Meets every Mon., 10:00-11:00 a.m., except holidays, at Savoy United Methodist Church, 3002 W. Old Church Rd., Champaign in the multipurpose rm. Call: Charlie Rohn (217) 549-6167 Email: carohn@sbcglobal.net
Respiratory Disease / Emphysema
Champaign
Better Breathers Club of Champaign-Urbana (2000 A,P) This group is for people with chronic pulmonary disease and their family and friends. The group provides education and support to those living with lung disease that affects their daily quality of life. Meets 4:45 to 6:15 p.m., 2nd Tues., Carle University West Bldg., classroom B, 810 W. University Ave. (corner of Lincoln Ave. and University Ave.), Urbana beginning on March 8, 2016. Call: Sarah Moore (217) 383-4558 Email: sarah.moore@carle.com National Website: aacvpr.org Write: Sarah Moore, Carle Foundation Hospital, Pulmonary Rehabilitation, 810 W. University, Urbana, IL 61801
Macon
Breath of Life Club, Decatur (1970 A,P) This group helps people with chronic obstructive pulmonary disease (COPD) and their families learn to live a more complete life. COPD includes emphysema, chronic bronchitis, and restrictive pulmonary disease (CHF, pulmonary fibrosis, sarcoidosis, and asthma). The group always has a speaker and respiratory therapists from the Pulmonary Clinic who are available to answer questions. Lunch or refreshments are served. Valet parking is provided. Meets 3rd Tues., March-Nov., 12:00-1:15 p.m., St. Mary’s Hospital, Rm. 561, 1800 E. Lake Shore Dr., Decatur. Call: Cheryl Shipley (217) 464-2603 Email: cheryl.shipley@hshs.org Write: Cheryl Shipley, St. Mary’s Hospital, 1800 E. Lake Shore Dr., Decatur, IL 62521
Vermilion
Better Breathers Support Group – Danville (2015 A,P) This support group is for people with chronic pulmonary disease. The group provides education and support to those who live with chronic lung disease that affects their quality of life. Meetings provide support, education, and social opportunities for people with chronic lung disease and their families. Meets 2nd Thurs. every other month 4:00-5:00 p.m. Feb., Apr., June, Aug., Oct., and Dec., Danville Public Library, 319 N. Vermilion St., Danville. Call: Amy Costa (217) 431-7996 or Kim Hernandez (217) 474-3921 Email: amy.costa@carle.com Local Website: https://action.lung.org/site/TR?fr_id=17171&pg=entry National Website: lung.org
Sleep Apnea
Iroquois
Rest Easy – CPAP Users Support Group (1995 F,P) This group is for people who use CPAPs (continuous positive airway pressure machines) and their families. Meets quarterly, 3rd Wed., Iroquois Home Care, 200 N. Laird Lane, Watseka. Please call prior to attending for meeting time. Call: Jody Wolford, Respiratory Therapist, Iroquois Home Care (815) 432-7794 Email: jaime.ortega@iroquoishomecare.com Write: Rest Easy Support Group, Iroquois Home Care, 200 N. Laird Lane, Watseka, IL60970
Spina Bifida
McLean
Central Illinois Spina Bifida Support Group (2000 A,L) The Illinois Spina Bifida Association works to improve the quality of life of children, adults, and families living with spina bifida. ISBA’s programs are available to anyone living with spina bifida in Illinois. There are no membership requirements. Programs are available at no- or low-cost. Central Illinois Community Programs and support groups will resume as Covid safety conditions will allow. Call: Illinois Spina Bifida Association (773) 444-0305 Email: info@i-sba.org Local Website: i-sba.org
Spinal Cord Injury
Macon
Spinal Cord Injury Patients (S.C.I.P.) Support Group (2015 F/L) This support group for disabled individuals offers support and information to persons who have suffered a spinal cord injury. Provides medical equipment to people who are in need such as electric wheelchairs, walkers, shower chairs, canes, toilet chairs, manual chairs, etc. Free of charge. Please call or email for meeting time and location. Call: Cathy Dyer 217-848-8989 or Jeff Brinkley (217) 419-8855 Email: cathy2004survivor@yahoo.com Email: Jeffbrinkley@rocketmail.com Write: 1340 W. Semor Drive, Decatur, IL 62521
Stroke / Aphasia
Champaign
Brain Injury Support Group of East Central Illinois (1990 A,P) This group provides support and education individuals who have sustained a traumatic brain injury or acquired brain injury (such as brain tumor, aneurysm, stroke, encephalopathies), as well as to the family members/caregivers. Call to confirm dates and times of meeting and events. Meets 2nd Sat., 10:30 a.m.-12:30 p.m., Houseworth Conference Rm., 2nd fl., Carle Mills Cancer Center, 611 W. University Ave., Urbana. Call: Dawn Henry (217) 383-6423; or the Brain Injury Association of Illinois (800) 699-6443 Email: dawn.henry@carle.com Email: info@biail.org Local Website: https://carle.org/Events/category/Support-Groups National Website: biausa.org Write: Dawn Henry, Rogers 3 Rehab, Carle Foundation Hospital, 611 W. Park St., Urbana, IL 61801
Stroke Support Group (1981 A,P) This group brings together stroke survivors and their caregivers for mutual help, fellowship, education, and service to others. Meets 1st Wed., 3:00-4:30 p.m. (call for the meeting room), OSF Heart of Mary Medical Center, 1400 W. Park St., Urbana. Call: Beth Romine (217) 337-4550 or Amy at (217) 337-2202 Email: beth.romine@osfhealthcare.org Email: rachel.calvin@osfhealthcare.org Write: Beth Romine, Rehabilitation, OSF Heart of Mary Medical Center, 1400 W. Park St., Urbana, IL 61801
Piatt
Stroke Support Network (2012 F,P) This group provides support and understanding to individuals dealing with the many physical and emotional challenges that a stroke creates. Members support each other as they learn to cope with new challenges in their own way and to find positive solutions to gain independence. Meets 4th Tues., 1:00 p.m. - 2:00 p.m. at Maple Point Supportive Living, Education Rm., 1000 N. Union, Monticello. Individuals who have experienced a stroke or TIA are encouraged to attend. Call: Leanne Griffin, Faith In Action Office (217) 762-7575, ext. 2 Email: lgriffinfia@yahoo.com
Vermilion
Illiana Stroke Survivors and Caregivers (1990 A,P/L) This group provides education and social support for survivors of stroke and for their caregivers. Meets 2nd Sat., April-Nov., 10:00 a.m., Immanuel Lutheran Church, 1930 N. Bowman Ave., Danville. There is also a summer picnic and a Sept. cookout. Call: Kathy Tucker (217) 765-2098 or (217) 474-9290 Email: gkt6399@aol.com
Transplants
Champaign
Leukemia/Lymphoma/Myeloma/Transplant Support Group (2007 F,L) This group provides support and education to patients, family members, and friends. Meetings are scheduled based on the needs of the group members. Call for meeting time and location. Call: Mica Witt (217) 586-1667 or (217) 898-1018; or Dan Culkin (217) 893-0362 Email: wittmi@frontier.com
Second Chance Transplant and Dialysis Support Group (1995 A,P/L) This support group is for people who have had or are considering any kind of organ transplant. Meets 1st Tues., 6:00 p.m. at Presence Covenant Medical Center, Auditorium A, B, or C, 1400 W. Park St., Urbana. Call: Frank Veach (217) 530-2390 or Alissia Young (217) 328-4100 Email: frankveach@hotmail.com
A: Affiliated with a state, national or international group
F: Freestanding group
L: Lay run/organized group
P/L: Professional and lay persons share facilitation/organizational roles in group
P: Professional facilitates and/or organizes group meetings